|
Resources for Patients and their Families:
Alliance of Genetic Support Groups 35 Wisconsin Circle, Suite 440 Chevy Chase, Maryland 20815-7015 1-800-336-GENE March of Dimes Birth Defects Foundation 1275 Mamaroneck Ave. White Plains, NY 10526 918-428-7100 MUMS (Mothers United for Moral Support) Parent to Parent Network 150 Custer Court Green Bay, Wisconsin 54301 414-336-5333 National Organization for Rare Disorders (NORD) P.O. Box 8923 New Fairfield, CT 06812 1-800-999-NORD Genetic Conditions and Rare Conditions Information http://www.kumc.edu/gec/support/groups.html Genetics Inforamtion - National Cancer Institutehttp://cancernet.nci.nih.gov/p_genetics.html Understanding Gene Testing http://www.gene.com/ae/AE/AEPC/NIH/index.html US Department of Energy - Human Genome Informationhttp://www.ornl.gov/techresources/human_genome/publicat/publications.html
|